Sunday, February 16, 2020

Allergic to Insulin

I want to introduce my good friend Linda Lee Corbett Mann. On Facebook she is known as Linda Lee. I first met Linda online in 2007 in the tudiabetes.org and diabetesdaily.com diabetes support groups. We have had many online discussions. Now we have discussions on Facebook messenger. My wife and I met Linda in November, 2009 in Boston. We had dinner together the evening before I participated in the Joslin Medalist Study.

Linda was diagnosed with diabetes in 1974, when she was 12. She was then diagnosed with an Anaphylaxis Allergy to insulin. The allergy has caused her to have many problems and complications during her 45 years with T1D. She has given me permission to post her story. Here is Linda's story.

"May I just say, Stress releases cortisol and causes much havoc with BS control no matter what your goals are. Then there are some people whose bodies reject insulin. I have lived 45 years with T1D and many complications are part of my life. I am not making excuses. Some of us try to use the right medical therapies for ourselves and follow the advice given by our Endo teams, but we have few positive results. Double Digit A1C’s has been my life. I know some of you may not believe how I survived for 45 years like this. I am alive and functioning well with my complications. If you look at me, I look like all of you who have a good A1C range.

Living a long life while having many complications is a blessing to say the least. Frame of mind and a positive mindset helps for sure. I have been in many diabetic studies thru the Joslin Clinic, Johns Hopkins and Harvard Medical School. I am even in a PDR -Physicians Drug Reference book.

By all rights living with a life threatening Anaphylaxis Allergy to insulin should have killed me in my teens. I have experienced several diabetes complications, including renal failure, and two heart attacks after my bypass CABG and 2-3 Sepsis. I am Legally blind with Proliferative Retinopathy.

Long story yes, but it must be told that YES, poor control can kill you earlier. It also has to do with who, how and where treatment is had. You must stay abreast of the studies and have a Positive Mind Set, with Excellent Doctors.

We all have a story to tell about our lives with Diabetes. As Richard knows I don’t take a 'No there is Nothing We Can Do for You' as an Answer to a Medical Problem. I have by far outlived what All the doctors have told me thus far!

I have grown to accept my story of T1D. The reason I wanted to stay private initially was that most people responded in disbelief to my having an anaphylaxis allergy to insulin and surviving. It hurt me because I LIVED through the testing and the studies and their method to help resolve my problem. Initially I was sensitive to negative criticism. It felt like some people thought I made it up. I hope that my story will help or encourage someone to be stronger and adapt to their situation in living with T1D. I wanted my story to be told.

Throughout the years one doesn’t need the perfect home or life and perfect numbers as a result to their diligent work. Just continue trying to gain control and working at it the best you can. It makes the setbacks real and gives you strength to continue the fight to stay as healthy as you can be."

Linda is legally blind, but she is able to tell her story. She presently lives in Maryland and she is the mother of two wonderful daughters. Her favorite hobby is boating on the rivers and the shore of eastern Maryland. She is currently active in training young dogs.

There are many links to insulin allergies. The link below gives a good summary of the different types.

https://www.iddt.org/about/gm-vs-animal-insulin/allergic-reactions-to-insulin?cn-reloaded=1

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