Saturday, October 31, 2015

Type 2 Diabetes...Different Subgroups

 Scientists have "found that there are actually three groups of people with Type 2 diabetes, each with a different set of problems associated with the disease."

Diabetes Misdiagnosis and DKA

My friend, Tom Karlya, aka Diabetes Dad, surveyed hundreds of diabetics. He found that many people with symptoms of diabetes are  misdiagnosed. The DKA present in so many of these individuals has, in some cases, led to terrible results. This has got to stop!

Tuesday, October 27, 2015

Medicare and CGM's

I have an MVP health insurance plan. It is affiliated with Medicare, so MVP must follow Medicare rules. Dexcom tried to get their CGM approved for me. It was denied. My endo then presented a letter of medical necessity to MVP, mentioning my hypo unawareness. I was turned down again. Here is the explanation from MVP for the denial:
"Per the MVP Policy Continuous Glucose Monitoring long-term continuous glucose monitoring systems beyond 72 hours (A9276, A9277, A2978) are not covered for Medicare products. Therefore the request is denied."
The denial is not very well worded. I think they are objecting to a device that is used in the skin for more than 3 days. An infusion set for a pump is usually recommended for 2 days, but many of us use them for 3 days. So MVP/Medicare approves pumps and infusion sets. A CGM sensor is recommended for 7 days, and many of us use them for 14 days, or longer. That is much longer than the 3 days approved, so MVP/Medicare denies coverage of a CGM.
I wonder why having a sensor in my skin for more than 3 days is considered inappropriate by Medicare. Does anyone know?

Postage Stamp, Discovery of Insulin

Saturday, October 24, 2015

Joslin 50 Year Medal, and Facebook Group

There is a secret Facebook group called "The Joslin Medalists". Every member in the group has a Joslin medal, and has been type 1 for at least 50 years. It is a pleasure to talk to other long term type 1 diabetics. Some of them have problems, but no serious diabetes related complications. It is interesting to note the topics being discussed there: problems with not being able to sleep much st night, basal testing, checking BG in the middle of the night, problems with the new Medtronic 530G pump and the Enlite sensor, problems with companies that send us diabetes supplies, questions and concerns about the new diabetes devices, and there was a question "Do apples raise your BG?" lol. Someone claimed apples had little effect on their BG. It is interesting to note that the discussions among seasoned type 1 veterans are pretty much the same as in any other group. We seem to have the same kind of questions and problems as the younger diabetics.
If you have been type 1 for 50 years and do not have the medal, you can contact Annie Lu at the Joslin Diabetes Center. If you already have the medal and want to join the Joslin Medalist group on Facebook, she can add you to the group. Here is her email address.

Blood Testing, No Blood Draw

A very interesting device for measuring blood glucose, without drawing
blood!! The designers are confident that in a relatively short period
of time it could be available in both portable and wearable forms.

Friday, October 23, 2015

Poor Grandma

And now for something completely different. A friend sent this in an email:

The computer swallowed Grandma,

Yes, honestly its true!

She pressed 'control' and 'enter'

And disappeared from view.

It devoured her completely,

The thought just makes me squirm.

She must have caught a virus

Or been eaten by a worm.

I've searched through the recycle bin

And files of every kind;

I've even used the Internet,

But nothing did I find.

In desperation, I asked Mr. Google

My searches to refine.

The reply from him was negative,

Not a thing was found 'online.'

So, if inside your 'Inbox,'

My Grandma you should see,

Please 'Copy', 'Scan' and 'Paste' her,

And send her back to me.

Wednesday, October 21, 2015

Adult Onset Type 1 Diabetes

A very interesting report on Adult Onset Type 1 Diabetes, with an update on statistics involving both type 1 in children, and in adults.

"....each year, about 15,000 children are diagnosed with Type 1 diabetes, and slightly more adults are diagnosed with rapid-onset Type 1 diabetes.  Study after study has shown that about 10% of people diagnosed with Type 2 diabetes are autoantibody positive, meaning that they have Type 1 autoimmune diabetes but have been misdiagnosed.  According to the ADA, in 2012 about 1.7 million people over the age of 20 were diagnosed with diabetes, and thus conservatively about 150,000 of those have slowly progressive Type 1 diabetes (LADA).  LADA eclipses childhood onset Type 1 diabetes by large numbers."

Monday, October 19, 2015

Prevalence of Diabetes in the US

An update on the prevalence of diabetes in the US. A very informative
 and alarming article.

 "Recent data indicate that nearly half of the U.S. adult population
 has diabetes or prediabetes, with prevalence of diabetes estimated at
 12% to 14% and prediabetes estimated at 37% to 38% in 2011 to 2012,
 according to recent study findings published in JAMA."

"During the next 25 years, the diabetes population is estimated to increase from 23.7 million to 44.1 million and annual diabetes-related spending is expected to increase from $113 billion to $336 billion."

Saturday, October 17, 2015

No Longer Needs Insulin

This is very exciting!! The first patient in the BioHub trials no longer requires insulin.

Medicare and CGM's

I have been experiencing low blood sugar episodes and not always feeling them. Many older type 1 people have this problem. This would not be so much of a problem if Medicare would cover CGM’s. I have not been able to use a CGM for three years. I had a 48 two nights ago, and did not feel it. A CGM would have helped so much. Many long term type 1 people have the same problem.
JDRF Advocacy is working hard to get Medicare coverage of CGMs. Please click on this link to send a prepopulated email to your Members of Congress asking them to co-sponsor this legislation!!! Click on “Take Action.”

Tuesday, October 13, 2015

A Conspiracy Theory Preventing A Cure?

Is There A Conspiracy Preventing A Diabetes Cure?

A very good blog about this issue was written on Diabetes Mine in 2012. This question is still being asked at the current time, so I think the content of the blog is certainly relevant.

Sunday, October 11, 2015

Thriving With Diabetes, a book

David Edelman created the wonderful diabetes website It was there that I learned so much about type 1, and I was convinced by my friends that I should use an insulin pump. David and his coauthor Dr. Paul M. Rosman, a clinical endocrinologist, have written a wonderful book. Look at it on Amazon. Click on it and you can read portions of it. There are some great reviews of the book included on the Amazon page.

Friday, October 9, 2015

Glucose Meter Accuracy Chart

I used AccuChek meters 1985-2006, and then used FreeStyle meters 2006-2015. The following link shows a chart that compares the accuracies of many brands of meters.

Interview, 70 Years of Type 1

I had the pleasure of discussing my 70 years of type 1 with Daniele Hargenrader. She interviewed me a month ago. Her Diabetes Dominator site has many wonderful interviews of noted DOC personalities. 
WARNING: My interview is 53 minutes long. Maybe you can tune in for part of it. It is difficult to discuss 70 years of diabetes in a short session.

Friday, October 2, 2015

Type 1 Survival, the Holocaust

This is a wonderful, but frightening account of a type 1 diabetic's survival during the Holocaust. At the end of the article you can click to read the man's story in his own words.

Thursday, October 1, 2015

Type 1 For 86 Years

Perhaps the longest living Type 1 person in the world. Diagnosed with Type 1 diabetes at age 3, Lillian Stamps has defeated the illness by using insulin daily for the past 86 years. According to Dr. Kariampuhza, Ms. Stamps’ endocrinologist, she could be the longest living person with diabetes.
“Lillian was diagnosed around a time when different medications were being discovered to help with diabetes,” said Dr. Kariampuhza. “She had been put on every medication to help treat it, she was diagnosed at age 3 and insulin was discovered in 1921.”
Born in 1926, Ms. Stamps remembers her childhood as being a difficult one, where she was put on all different kinds of insulin that were newly invented back in the 20s. Her parents kept her insulin cool in the water well in the front yard because refrigerators were expensive.
“They didn’t have all the things to check your blood sugar like they do now,” said Ms. Stamps. “You used to have to test urine, and when it was blue or green that meant it was low and I would get to eat something.”
Ms. Stamps was given an award for living with Type 1 diabetes for 75 years and will be getting another one this year for 80 years - for recognition of exceptional achievement in living courageously with diabetes for more than 80 years, from the Joslin Diabetes Center, the world’s largest research center in Boston Massachusetts.
“Diabetes affects many organs, usually people will die due to the complications from diabetes,” said Dr. Kariampuhza. “I have nominated her and arranged for her to receive medals for living with diabetes for this long.”
Dr. Kariampuhza has written to the American Diabetes Association three times to nominate Ms. Stamps to receive a medal for 25 years, 50 years and now 75 years for being committed to her health and managing her diabetes for 86 years.
“I’ve been her doctor for more than 10 years, she is extremely committed to taking care of herself,” said Dr. Kariampuhza.
Ms. Stamps continues to use insulin and manages her health by eating well and is cared for by the staff at Brookdale Tyler East in Tyler. According to Ms. Stamps, the hardest years of her life were her teenage years, because she found it difficult and embarrassing to always have to say no to certain foods or drinks.
“I never was married or had children because they told me I wouldn’t live long enough to do any of that,” said Ms. Stamps. “I lived a normal life, and my favorite thing to eat is ice cream, but it has to be sugar free.”
Diagnosed with Type 1 diabetes at age 3, Lillian Stamps has defeated the illness by using insuli...